|
Organisation |
Brief description |
Web address |
Comments |
|
National Society for Epilepsy |
UK organisation, with national helpline, medical and residential services |
www.epilepsynse.org.uk |
Comprehensive site with information about epilepsy and about the Society’s medical and residential services. |
|
St Piers |
UK national centre for children and young people with epilepsy and other neurological disorders |
www.stpiers.org.uk |
Information about the organisation’s school and further education centre, research, assessment service and resource centre. |
|
David Lewis Centre |
National provider of medical assessment, education (including further education) and residential care for people with epilepsy |
www.davidlewis.org.uk |
Clear information about services provided by the centre. |
|
Epilepsy research group |
UK centre of excellence in clinical and basic scientific research |
www.erg.ion.ucl.ac.uk |
Information about the Epilepsy Research Group |
|
Fund for Epilepsy |
Raises money to fund epilepsy research, including the Institute of Epileptology |
www.epilepsyfund.org.uk |
Information about the Fund for Epilepsy and the organisations it supports. |
|
British Epilepsy Association |
Support, literature and local groups for people living with epilepsy |
www.epilepsy.org.uk |
Attractive and comprehensive site with information for the general public, children and professionals. |
|
Epilepsy Bereaved |
Information, support and campaigning into epilepsy related deaths. |
www.bodley.ox.ac.uk/external/epilepsy |
Basic but useful site with information on epilepsy-related deaths and the work of the organisation. |
|
Epilepsy Canada |
Website of Canadian epilepsy association |
www.epilepsy.ca |
In French and English; comprehensive information about epilepsy, including social issues. |
|
EpiNet |
Website of the Epilepsy Foundation of Victoria, Australia |
www.epinet.org.au |
Information and articles about epilepsy. Discussion groups. |
|
Epilepsy International |
Resource Centre for epilepsy information |
www.epiworld.com |
In English and Spanish; information, history of epilepsy knowledge (including an interesting page on famous people with epilepsy), medical references and professional area. |
|
Epilepsy Foundation of America |
www.efa.org |
Comprehensive site |
|
|
EpiNet |
Website of the Epilepsy Foundation of Victoria, Australia |
www.epinet.org.au |
Information and articles about epilepsy, personal stories and discussion groups on a range of issues. |
|
Epilepsy Canada |
www.epilepsy.ca |
Information about epilepsy and about the association |
|
|
Epilepsy foundation of America |
www.efa.org | ||
|
NHS Direct |
Nurse-led 24 hour helpline offering information and advice |
www.nhsdirect.nhs.uk |
Lists epilepsy organisations and evaluates some available patient information. |
|
Medline |
Clinical papers database |
www.nlm.nih.gov/medlineplus |
Contains publications on a range of subjects including epilepsy, from different organisations. |
|
Medscape |
Medical publishers database |
www.medscape.com
|
Contains publications relating to epilepsy. |
|
Health in Focus |
UK site for health information |
www.healthinfocus.org.uk
|
Comprehensive site with information about many conditions, support groups and a chat room. |
|
Patient Information Publications |
On-line publications reference site |
www.patient.co.uk |
Contains references to publication and epilepsy organisations. |
|
Healthfinder |
US Department of Health site |
www.healthfinder.gov |
References to websites and organisations for epilepsy |
|
Mediaconsult |
Independent site providing information |
www.mediaconsult.com |
References to publications about epilepsy, and support groups. |
|
Electronic Medicines Compendium |
Information about medication |
www.emc.vhn.net |
This information has been approved by the Department of Health’s Medicines Control Agency, and the site is updated regularly. |
|
Support Dogs |
Dogs trained to assist their disabled owners, including seizure alert dogs |
www.support-dogs.org.uk |
Information about research, training and how to get a seizure alert dog. |
|
Samaritans |
Confidential telephone and email helplines for people in crisis |
www.samaritans.org.uk |
Information about the Samaritans and how to contact them. |
|
National Disabled Person’s Housing Service |
Alliance of housing agencies and voluntary organisations for disabled people. |
www.hodis.org.uk |
Information about the organisation |
|
SKILL |
National Bureau for students with disabilties |
www.skill.org.uk |
Useful site with information sheets on issues such as applying to college and disclosing disability. |
|
Cando |
Specialised careers information for disabled students and graduates |
http://cando.lancs.ac.uk/scripts/d/start.idc |
Information and guidance on issues such as getting into employment, financial assistance and disability discrimination legislation. |
|
DisabilityNet |
Internet service for disabled people |
www.disabilitynet.co.uk |
Contains news, events, discussions and links to sites for specific conditions |
|
Disability World |
Directory of websites for disabled people |
www.disabilityworld.com |
Extensive links page. |
|
RADAR (Royal Association for Disability and Rehabilitation) |
National campaigning and advisory disability body |
www.radar.org.uk |
Information about issues such as education, employment, holidays and leisure. |